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JOIN US
If you are a parent of someone diagnosed with Jamuar Syndrome, you’re not alone. We can put you in touch with a patient family network and talk about how we can accelerate research together.
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If you are a medical or scientific professional interested in UGDH-related disorders or volunteering on our Scientific Advisory Board, we’d love to hear from you!
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Whatever your background may be, we would love to keep you updated on our work. Please get in touch with us below.
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