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If you are a parent of someone diagnosed with Jamuar Syndrome, you’re not alone. We can put you in touch with a patient family network and talk about how we can accelerate research together. 

If you are a medical or scientific professional interested in UGDH-related disorders or volunteering on our Scientific Advisory Board, we’d love to hear from you!

Whatever your background may be, we would love to keep you updated on our work. Please get in touch with us below.

Contact The UGDH Foundation

Would you like to subscribe to email updates from The UGDH Foundation?

Thank you for contacting The UGDH Foundation.  We look forward to having a conversation with you.

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