Join us at the first global online UGDH Family & Scientific Meeting 2026!

World class clinicians and scientists as well as dedicated family and friends of patients with Jamuar syndrome will converge for presentations on

• clinical features and genetics of Jamuar syndrome/UGDH-related disorder

• relevant therapeutic approaches

• state of natural history collection

• updates from recent research

and more!

Day 1 on Thursday, May 21, will focus on the patient experience and clinical trial readiness.

Day 2 on Friday, May 22, will focus on the latest research about Jamuar syndrome/UGDH-related disorder.

Live translated captions will be available in 15 languages.

Can't attend live? Register anyway for faster access to recordings.

Click here to for more info and to register!